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INDIANA UNIVERSITY STUDY INFORMATION SHEET FOR

Down Syndrome Video Game Preferences

 You are being asked to participate in a research study of video game preference of children with Down syndrome.  You have been selected as a possible participant in this study because of your online membership with a local or national Down syndrome group.  From this study, the researchers hope to learn how to attract people with Down syndrome to video games that promote learning. They also hope to learn how Down syndrome symptomology influences video game preferences. You must be over 18 to participate in this study

The study is being conducted by Andrew Weaver and Kelsey Prena.

STUDY PURPOSE

The purpose of this study is to ask parents about their children’s video gaming habits and preferences.

PROCEDURES FOR THE STUDY:

If you agree to be in the study, you will do the following things:

If you choose to participate in this study, you will complete an online survey.  The survey will ask you questions about your child with Down syndrome. Questions are about what video games and on which gaming systems your child plays most frequently, symptomology, and basic demographics.  The survey should not take more than 30 minutes of your time. Findings can be provided upon request

 CONFIDENTIALITY

Efforts will be made to keep your personal information confidential.  We cannot guarantee absolute confidentiality.  Your personal information may be disclosed if required by law.  Your identity will be held in confidence in reports in which the study may be published.  Your responses will not be connected to your name.

 Organizations that may inspect and/or copy your research records for quality assurance and data analysis include groups such as the study investigator and his/her research associates, The Indiana University Institutional Review Board or its designees, and (as allowed by law) state or federal agencies, specifically the Office for Human Research Protections (OHRP) who may need to access your research records.

 PAYMENT

 You will not receive payment for taking part in this study. 

 CONTACTS FOR QUESTIONS OR PROBLEMS

 For questions about the study, contact the researcher Andrew Weaver, 812-856-2552 or by email at weaveraj@indiana.edu or Kelsey Prena at kprena@indiana.edu

 For questions about your rights as a research participant or to discuss problems, complaints or concerns about a research study, or to obtain information, or offer input, contact the IU Human Subjects Office at (812) 856-4242 or by email at irb@iu.edu

 VOLUNTARY NATURE OF STUDY

 Taking part in this study is voluntary.  You may choose not to take part or may leave the study at any time.  Leaving the study will not result in any penalty or loss of benefits to which you are entitled.  Your decision whether or not to participate in this study will not affect your current or future relations with Indiana University.