INDIANA UNIVERSITY STUDY INFORMATION SHEET FOR RESEARCH

Study #1910386228

Parental Reactions to News Coverage of Food Allergies

 

About this research

You are being asked to participate in a research study.  Scientists do research to answer important questions which might help change or improve the way we do things in the future.

 

This form will give you information about the study to help you decide whether you want to participate.  Please read this form, and ask any questions you have, before agreeing to be in the study.

 

Taking part in this study is voluntary. 

You may choose not to take part or may leave the study at any time.  Leaving the study will not result in any penalty or loss of benefits to which you are entitled.

 

This research is intended for individual 18 years of age or older. If you are under age 18, do not complete the survey.

 

Why is this study being done?

The purpose of this study is to understand how exposure to news coverage of food allergies might influence how parents and children understand and manage food allergies. We hope to better understand how news media shapes family communication about chronic health conditions like food allergies.

 

You were selected as a possible participant because you are a parent of a child with a food allergy.

 

The study is being conducted by Nicole Martins, PhD, Associate Professor of Communication Science, Indiana University, and Jennifer Bute, PhD, Associate Professor of Communication Studies, Indiana University-Purdue University Indianapolis.

 

What will happen during the study?

If you agree to be in the study, you will do the following things:

Complete a survey about exposure to news stories about food allergies. The survey should take you about 40 minutes to complete.

 

What are the risks and benefits of taking part in this study?

There are no more than minimal risks for participating in this study. If there is any, you may be uncomfortable answering questions related to your child’s food allergy experiences.

 

We don’t expect you to receive any direct benefit from taking part in this study, but we hope to learn things which will help social scientists in the future.

 

How will my information be protected?

All research includes at least a small risk of loss of confidentiality. Efforts will be made to keep your personal information confidential.  We cannot guarantee absolute confidentiality.  Your personal information may be disclosed if required by law.  Your identity will be held in confidence in reports in which the study may be published.

 

Organizations that may inspect and/or copy your research records for quality assurance and data analysis include groups such as the study investigator and his/her research associates, the Indiana University Institutional Review Board or its designees, and any state or federal agencies who may need to access your research records (as allowed by law). 

 

Will I be paid for participation?

No, there is no compensation.

 

Who should I call with questions or problems?

For questions about the study, contact Dr. Nicole Martins (812-855-7720; nicomart@indiana.edu ) or Dr. Jennifer Bute (317-274-2090; jjbute@iupui.edu).

 

For questions about your rights as a research participant or to discuss problems, complaints or concerns about a research study, or to obtain information, or offer input, please contact the IU Human Subjects Office at 800-696-2949 or at irb@iu.edu.

 

 

Form date: November 18, 2019

Are you a parent of a child with a food allergy
What is the gender of this child?
To which food(s) is your child allergic (check all that apply):
Thinking of your child's worst allergic reaction, please indicate how severe the reaction was:
Have you ever had to administer epinephrine to your child after a reaction to food?
Has your child ever had to self-administer epinephrine after a reaction to food? 
Has your child visited an emergency room in the past year for food allergy-related reasons?